Hanging in There

Nothing to see here just a girl sitting in a public cafeteria crying while watching a sad show. And then the text comes through that Mom gets her B12 shot tomorrow. It’s to combat side effects. She will be set to start chemo the week of November 4th. And now I’m crying not because of the show but because of real life.

The past 3+ years have been a time of memories and miracles but it’s also been a time of worry and heartache. We are blessed to be going back to Disney in 10 days. But the things that come after that, well it feels scary. With a new drug comes new side effects. And then there is the whole what happens when this thing doesn’t work?

I’m doing my best to enjoy the moments but the thoughts still creep in. And I will wake up certain mornings at 2am just sick to my stomach because the idea of another drug not working is too much to handle.

So I just let myself feel all the feelings because that’s all I can do. So sometimes I will laugh and sometimes I will burst into tears and that’s ok.

CA125 Update

I’m just going to cut to the chase. Doxil is not working. Mom’s CA125 is now 4,298 from 2,530 last month. Her doctor is taking her off this chemotherapy treatment because it’s not doing anything and the cancer has continued to grow while she was on it.

We are incredibly limited with the types of treatment mom can be on due to the fact that she is platinum resistant, PARP resistant and the location of her cancer. We will meet with her oncologist Monday but as of now the plan is to start Alimta which is a chemotherapy drug used primarily in lung cancer patients but has been shown to work a bit in a small number of ovarian cancer patients.

Here’s the thing. I’ve been trying to close out this blog for about 30 minutes and I don’t know what to say. So I’ll just finish with this.

Mom, I am so incredibly proud to be your daughter and I love you 💜

Results

Mom’s CA125 is now 2,530 from 2,140 in July. The scan showed that the cancer in her lymph nodes has grown.

So the Doxil is not working but we are giving it one last chance. Today mom will receive Doxil. In about 4 weeks she will get another CA125 blood draw and if it reaches 3,000 we are kicking it to the curb.

Next up would be a drug used to treat lung cancer. So to say we are desperate is an understatement. But hey, it’s worth a try!

It’s not the best news but it’s not the worst.

As always thank you for lifting us up in your prayers and kind words. 💜

Waiting…

The waiting is the hardest part….there’s a song in there somewhere. Mom had her CT scan this morning and now we wait and wonder. Wonder if the scan will be posted before Monday morning. Wonder if the nurse will call in the next 3 days to give us the news before she meets with her oncologist on Monday morning. And the worst wondering of all…wonder if the cancer has grown and/or spread. We should be used to it by now after 3 years but truthfully at this stage of the “game” it just gets harder.

As always thank you from the bottom of our hearts for praying for us and sending us so much love. 💜

CA125 Update

Mom’s CA125 is now at 2,140. It was 2,153. So it’s down 13. Which is positive. It’s obviously not quite what we were hoping for but it beats the alternative.

The plan is Doxil today. A CT scan the week of August 19th. And an appointment the week of August 26th to go over the results and decide whether to continue with this treatment or go a different direction.

So today’s treatment is a big one and the scan in August will be the indicator of whether this treatment is truly working.

As always thank you for the love and support and all of the prayers 💜

Is it working? 🤷🏻‍♀️

I just keep searching on google “how long can you live when treatment no longer works and you have ovarian cancer” and different forms of that trying to find an answer. I know google doesn’t have that answer. But maybe I think knowing would soften the blow or something. I don’t know.

So far it appears the Doxil is not working. And for some patients their CA125 goes up after cycle 2 and then the drug kicks in. After 2 cycles mom’s CA125 is up to 2,153. It was 1,613 in May. She completed cycle 3 on Tuesday and on July 19th she will have a blood draw to see where her CA125 stands after 3 cycles.

In August she will have a CT scan. If the scan isn’t good and the Doxil is in fact not working there will be some decisions to be made because we are at the bottom of the barrel as far as ovarian cancer treatment drugs go.

For now we will try to put all of this nonsense out of ours heads and head to Florida in July and Hilton Head in August because that’s what we do.

As always thank you to all that pray for us and send us so much love. On June 24th it will be 3 years since her diagnosis and all your love and support has helped carry us through. 💜

Scan Results & A New Plan

Mom had a CT scan last Thursday. Today she and dad met with her oncologist to go over her results and a new treatment plan.

Her CA125 is now up to 744 (it was at 482 on 3/18/2019). The lymph nodes that were enlarged on her scan in February have grown by 30%. And she has irregular thickening along the medial wall of her cecum (the beginning of the large intestine) because of the cancer.

Because the cancer still progressed while she was receiving treatment they have in fact determined that her cancer is now resistant to platinum based chemotherapy drugs.

Tomorrow she will have an echocardiogram and if all looks good she will begin the chemotherapy drug Doxil. The echocardiogram is necessary because Doxil can interfere with the pumping of the heart and they want to make sure hers in working properly before treatment.

If all checks out she will have Doxil once a month for 4 months and then another CT scan.

As always thank you all for the love and prayers and support. It means so much to us! 💜